Anna Valenn - Think Tank / VO |
Q54 WHY DO YOU NEED CUES AND PROMPTS?
People with autism are sometimes unable to move on to their next action without a verbal prompt. For example, even after we ask for a glass of juice and are given it, we won’t actually start drinking until someone’s said, ‘Enjoy’ or ‘Go ahead and drink, then.’ Or even after the person with autism has announced, ‘Right, I’ll hang the laundry now,’ he won’t get started until someone has said back, ‘Okay, that’s great.’
I don’t really know why people with autism need these cues, but I do know that I’m one of them. Since we already know what we’ll be doing next, surely we should just be able to get on with it, unprompted, right? Yes, I think so too! But the fact is, doing the action without the cue can be really, really tough. In the same way as you don’t walk over the crossing until the light turns green, I can’t ‘switch on’ the next action until my brain receives the right prompt. Doing the next action without obeying ‘the prompt rule’ is terrifying. It’s enough to make me lose the plot completely.
Once we’re through the terrifying phase, we can, bit by bit, become used to the idea that doing things without the prompt is possible. But getting to that point isn’t something we can do alone – as you can tell, by the mega-fuss we make every time. We cry, we scream, we hit out and break things. But still, we don’t want you to give up on us. Please, keep battling alongside us. We are the ones who are suffering the most in these scenes, and badly, badly want to free ourselves from our own chains.
Naoki Higashida, The Reason I Jump: one boy's voice from the silence of autism translated by David Mitchell, Keiko Yoshida / Sais-tu pourquoi je saute ? La voix intérieure d'un autiste de 13 ans traduit de l'anglais par Daniele Roche pour les éditions Les Arènes; en format poche J'ai Lu - Écrit par un jeune autiste de 13 ans, et sous la forme d'un jeu de questions-réponses, nous donne un aperçu de ce que ressent l'autiste, et nous aide à comprendre et peut-être à gérer.
Les personnes atteintes d'autisme dessinent souvent des lettres en l'air. En nous regardant faire, vous devez vous demander, je suppose : "Il veut me dire quelque chose ?" ou bien "Il pense à quelque chose ?" Moi, j'écris pour fixer ce que je veux me rappeler. Quand j'écris, je me souviens de ce que j'ai vu, pas les moments eux-mêmes, mais les lettres, les signes et les symboles. Ce sont mes meilleurs alliés parce qu'ils ne changent jamais. Ils restent comme ils sont, fixés dans ma mémoire.